The Chair welcomed
Kieran Caldwell – Head of Service and Supplier Management
(NHS England), Sarah Freeman – Service Specialist (NHS
England) and Dominic Kavanagh from the Cystic Fibrosis Trust.
Mr Caldwell stated
that the services relating to cystic fibrosis were highly
specialised and that it was deemed sensible to try and centralise
expertise across the West Midlands.
explained that Cystic Fibrosis services in the West Midlands were
commissioned by NHS England’s specialised commissioning team.
There were 487 patients currently in adult care and 392 patients in
paediatric care across the West Midlands, including those that did
not yet need inpatient care.
identified a growing demand for services and the need for another
Cystic Fibrosis (CF) inpatient unit in the West Midlands. This led
to work being undertaken with the Royal Wolverhampton Hospitals NHS
Trust (RWT) which opened a new,
specially designed outpatient unit in April 2016 (Heart of England
Foundation Trust (HEFT)). However, the Trust was unable to develop
the facilities required for an inpatient service in
It was stated that
there would be some capacity at the University Hospital North
Midlands and that outpatient care was being negotiated for
Wolverhampton with additional capacity in Leicester and Nottingham
whilst work was being undertaken at the Heart of England
from the Cystic Fibrosis Trust stated that he attended the Heart of
England facility following a double lung transplant. Mr Kavanagh
stated that members of the Trust had been consulted and he had been
involved in a peer review of other cystic fibrosis services which
had provided him with a good understanding of what good care was.
Mr Kavanagh stated that people with cystic fibrosis were generally
very aware of what was required to maintain good health and were
often not adverse to travelling longer distances to receive the
required levels of care.
Impatient care was
currently provided at the Royal Stoke Hospital and the model used
was similar to what was wanted for Wolverhampton with all but 2
patients moving to this model.
The aim was to
continue to expand services at the Heart of England Foundation
Trust and Royal Stoke but it was also realised that an additional
centre was needed and that expressions of interest were being
sought from existing respiratory centres.
Mr Caldwell agreed
that resources would always be a concern but that there had been a
good response from the hospitals regarding bringing a plan
together. This plan included the development of existing wards at
Heartlands to create wards with a negative air pressure and the use
of more outpatient treatment and individual clinic rooms.
A question was
raised regarding what steps were taken to ease the transfer of
children into the adult services which could be traumatic if not
handled correctly. It was stated that this was a familiar process
and that there were transition clinics for those due to transfer in
the next 6 months and visits were made to the Birmingham
Children’s Hospital to ...
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